Showing posts with label Virtual Medicine. Show all posts
Showing posts with label Virtual Medicine. Show all posts

Friday, 8 March 2013

Using the Web to Improve Care for Depression

I've imagined that if I were starting my career in psychiatry now I'd work at the intersection of clinical care and the web. A recent article on "Web-Delivered Care Management and Patient Self-Management Program for Recurrent Depression: A Randomized Trial" convinces me to stick with my fantasy about what I'd do if reincarnated.

The project was conducted at The Permanente Medical Group in Northern California. Patients with chronic or recurrent depression were invited to participate in a randomized trial of usual care compared to usual care plus a web-based care management and patient self-management program that was available for 12 months. The web program included self-monitoring tools, secure messaging with a nurse care manager, depression education stressing cognitive behavioral methods, a monitored discussion group, a personal database, task lists, and an appointment calendar. Interviewers blind to the treatment condition interviewed the patients at 6,12, 18 and 24 months. Participants could enlist a "care partner" for whom web-based materials were also available.

The outcomes were impressive. The "experimental" group had significantly greater reduction in depression that lasted through the year after the web-based intervention ended. They had more confidence in their ability to cope with the mood disorder and more satisfaction with their care. The intervention itself cost $345 per participant. The nurse care manager logs indicated that a nurse could manage 200 patients in ten hours a week. There was no difference in total medical costs between the two groups.

So why do I write about this on an ethics blog?

In 1994 I was asked to edit a quarterly column about managed care for the American Psychiatric Association journal Psychiatric Services. (I edited and wrote the column for ten years.) Readers probably wanted to read about the evils of managed care, but I felt there was more than enough managed care bashing available, and chose to develop columns on how to manage care in ways that were clinically informed and ethically admirable. My underlying belief was, and is, that managed care, "appropriately" conducted, is the most ethical way to structure a health care system.

The e-care program at Kaiser Permanente took evidence-based components of effective treatment for depression and "re-engineered" them into an efficient web-based format. The medical group carried out the intervention and studied it in a rigorous manner. Their work combined clinical innovation with development of valuable new knowledge. The intervention appears to deliver more benefit at no increase in cost. "Benefit" is a bland word, but anyone who has experienced depression or is close to someone who has knows how much suffering the condition can entail.

There's an ethical imperative for us clinicians to evaluate what we do in order to make treatment more effective and efficient over time. That's what the team at Kaiser Permanente and their colleagues did. It would have been clinically and ethically acceptable for them to have implemented the program without studying its results, but they conducted research along with implementing the program. As a result, we're smarter and have new tools for making treatment better. That's why I write about their work in an ethics blog!

Tuesday, 20 December 2011

Why Patients Should Have Easy Access to their full Medical Records

Two articles in today's issue of the Annals of Internal Medicine present research on patient attitudes towards access to their doctor's notes: do they want to read the notes? do they think reading notes could be harmful? and, would they share the material with others? The articles and the accompanying editorial put some flesh onto the often vacuous buzzword "patient-centered care."

One article discusses OpenNotes, a year-long test of giving patients ready access to their primary care physicians' notes at sites in Boston, rural Pennsylvania and Seattle. The other describes a VA survey of patients who use My HealtheVet, the VA personal health record system.

Virtually all respondents believe that having access to their doctors' notes would help them. A minority (fewer than 1 in 6) was concerned that the notes would confuse them or cause worry. In the VA survey, 4 of 5 would want to share aspects of their record with family caregivers and other physicians.

The editorial described of how the M.D. Anderson Cancer Center has given patients and their referring physicians access to the Anderson electronic medical record. Since May 2009 more than 40,000 patients have viewed their records over 605,000 times, and 1,300 referring physicians have accessed the records of their patients over 28,000 times. 84% of Anderson's active patients have obtained access to their records. The editorial concludes:
Any health care organization with an electronic medical record and a secure Internet portal can provide patients and referring physicians with real-time access to medical records from anywhere in the world, opening the door to levels of patient engagement and care coordination not previously possible.
I believe that ready access to our own medical records is an important piece of what patient-centered care will mean in the future. The group I practiced with for thirty five years was using an electronic record when I joined. By the good fortune of having been forced to learn touch typing in middle school, I kept the keyboard on my lap and could look at my patient while making notes. I often consulted them about what we should put into the record. In the future I hope that in addition to having real time access to their records there will be ways for patients to make entries of their own. That's collaborative care!

The OpenNotes team compares the innovation they are testing to a new drug. OpenNotes is approaching a potential policy change in an admirably empirical manner. There's lots of reason to be optimistic about the benefits the intervention will offer, but my optimism is a hypothesis, not an established truth.